Day by day

Hi everyone,

Sahara had a rotten day yesterday. I guess she had earned a day off, all things considered! Coming off decadron is one of the hardest things she's had to face. She woke up with a bright red face and a headache, and was so lethargic she could barely keep her head up. We ended up cancelling her therapies and letting her sleep, because she simply couldn't function. They upped her hydrocortisone, which helped tremendously, and she's soooo much better today. She did some serious standing and stretching this afternoon.

Poor kid...now she's also having to face skin tears. It's a blessing that she's moving, but her skin is so fragile from the evil steroid - it's like tissue paper. She has bandages all over! At the rate she's going, she'll be fully costumed as a mummy by halloween. LOL.

Last night we put up the artwork her cousins worked so hard making! Thanks to Carson, Elise, Claire, Evan and Cole - you really brightened up her boring walls. She loved the jokes, too!!!

To Evelyn and Comer: Shannon wanted me to tell you that your package arrived. :) Sahara's going crazy wondering what's in that big box. LOL. Thank you!!!

Shannon should be here soon and it's going to be great to have him back. We hope to enjoy a great weekend together. He's looking forward to meeting the therapists who are working so hard to get Sahara back on her feet.

Thanks to everyone who continues to post...we enjoy reading them so much!

Love,
Amy